What is Amyloidosis?
Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.
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My hTTR-PN Journey

Tisha Downing
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2026 Spring Newsletter

April 30, 2026
Be sure to catch up on the latest happenings in our spring newsletter here!
Calendar & Upcoming Events
If I Knew Then What I Know Now: Lessons learned along my journey treating patients with Amyloidosis and in life
Webinar Session: Wednesday, May 20th at 6 PM (ET) Zoom Meeting
(These sessions will not be recorded due to patient involvement and HIPAA laws)
To Register HERE
If I Knew Then What I Know Now: Lessons learned along my journey treating patients with Amyloidosis and in life
Join us for an intimate session where fellow amyloidosis patients and caregivers share valuable lessons they’ve learned through their journeys. This gathering is a chance to exchange personal insights and practical tips that only experience can teach. Please bring one lesson you’ve learned to share with the group, as we cultivate a supportive space to learn from each other and strengthen our community. Together, we can enhance our ability to manage amyloidosis with knowledge, empathy, and collective wisdom.
Speaker: Stacey Goodman, MD completed her hematology training at the NIH and Vanderbilt University before joining the faculty in 1993. She helped create and lead the Vanderbilt Amyloidosis Multidisciplinary Program (VAMP) until her retirement in 2021. She currently serves as a member of the board of directors at the Amyloidosis Foundation.


Amyloidosis Patient Profile: How I Changed My Life for the Better After Receiving an Amyloidosis Diagnosis
Webinar Session: Wednesday, May 13 at 6 PM (ET) Zoom Meeting
(These sessions will not be recorded due to patient involvement and HIPAA laws)
To Register HERE
Amyloidosis Patient Profile: How I Changed My Life for the Better After Receiving an Amyloidosis Diagnosis
Speaker: Alison Keenan : I am a Registered Nurse, diagnosed with AL in 2014. I has an Autologous Stem Cell Transplant in 2015 after receiving CyBorD chemotherapy. I have had impact to my kidneys specifically. I have appreciated Total Response for the last 9 years but have recently experienced a slight increase in my light chains with a decrease in my EGFR. I am on every 3 month lab value observation hoping to avoid further chemo. I am an active advocate in increasing awareness of AL and attend a support group in Nashville. My transplant was done at Froedtert and Medical College of Wisconsin and then I moved to Tennessee 3 years later and get care thru Vanderbilt. I am an Educator/Evaluator for Intermountain Therapy Animals and have a Therapy Dog Team. I am author of a children’s book about my Therapy Animal.


Cardiac transplantation in amyloidosis – who, when, and (then) what
Webinar Session: Wednesday, April 22nd at 6 PM (ET) Zoom Meeting
(These sessions will not be recorded due to patient involvement and HIPAA laws)
To Register HERE
Cardiac transplantation in amyloidosis – who, when, and (then) what
When is a heart transplant considered in amyloidosis, and who qualifies? In this session, we break down how doctors evaluate candidacy, how disease type (ATTR vs AL) and timing impact outcomes, and what life looks like after transplant. We’ll cover risks, recovery, and how transplant fits with modern therapies so you can make informed decisions with your care team.
Speaker: Dr. Hasan Siddiqi is an advanced heart failure cardiologist who is the director of the cardiac amyloidosis program and assistant professor of medicine at Vanderbilt Univ Medical Center in Nashville, TN. He is board certified in internal medicine, cardiology, heart failure, cardiac transplantation and echocardiography. Dr. Siddiqi is involved in multiple studies and trials in the treatment of cardiac amyloidosis patients, as well as being developing a novel research program for cardiac amyloidosis at Vanderbilt University. In addition to cardiac amyloidosis, Dr. Siddiqi also manages patients with heart failure, ventricular assist devices and heart transplantation in his clinic, in the ICU and inpatient units. Dr. Siddiqi graduated from Harvard College with a degree in neurobiology, then went to the Univ of Michigan for medical school and his masters in clinical research, followed by residency at the University of Pennsylvania. He then pursued cardiology, heart failure and transplantation fellowships at Brigham and Women’s Hospital/Harvard Medical School, following which he was appointed assistant professor of medicine at Vanderbilt Univ. He lives with his wife and two young children in Nashville, TN.


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