7151 N. Main St. Ste. 2 Clarkston, MI 48346
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GivingTuesday 12/2/2025

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2025 Fall Newsletter

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AL Amyloidosis

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Amyloidosis Awareness Items

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Hereditary Amyloidosis

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The Amyloidosis Channel

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Patient Education Activity

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What is Amyloidosis?

AMYLOIDOSIS is a term that represents several different types of diseases where an abnormal protein called amyloid is produced. These amyloid protein fibers can attach and deposit into organs, tissues, nerves, and other places in the body. When that happens, normal function of the area can be affected. As the amyloid protein increases, health problems and organ damage may occur. “OSIS” means increased, or an abnormal, supply of AMYLOID protein.

Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.

Featured Patient Story

My AL Story

Neal McMichael

I was diagnosed with Carpal Tunnel Syndrome and had CTS surgery on both my left and right wrists in late 2017. I had my annual physical in January 2018, Blood Testing (TSH) found hypothyroidism (Hashimoto’s) and also found an M-Spike (High Protein Level) and I became extremely fatigued over the next 6-8 months. I then started having what felt like...
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Latest Headlines

Efficacy of Acoramidis in Wild-Type and Variant Transthyretin Amyloid CardiomyopathyResults From ATTRibute-CM and Its Open-Label Extension

November 12, 2025

JAMA Cardiol

Published Online: November 8, 2025

Today at the AHA congress in New Orleans, BridgeBio presented data showing that acoramidis significantly reduces all-cause mortality (through month 42) in people living with hereditary ATTR-CM population, with specific benefit noted in those living with...

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Calendar & Upcoming Events

Webinar: Heart Failure in Amyloidosis: Recognizing Symptoms and Taking Action

When


December 3, 2025    

6:00 pm - 6:45 pm

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Webinar Session: Wednesday, December 3rd, 2025 at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

Speaker: Dr. Nitasha Sarswat, cardiologist at UChicago Medicine

 

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Webinar: Marriage Support While Caring for a Loved One Living With a Chronic Disease

When


November 26, 2025    

6:00 pm - 6:45 pm

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Webinar Session: Wednesday, November 26th, 2025 at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

Speaker: Ian Warburg

 

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Webinar: Simple Digital Tools to Improve Your Patient Journey

When


November 19, 2025    

6:00 pm - 6:45 pm

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Webinar Session: Wednesday, November 19th, 2025 at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

Simple Digital Tools to Improve Your Patient Journey

Speaker: Thomas Bartlett

 

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Amyloidosis Videos

This section features a collection of informative videos that provide valuable insights into amyloidosis. Watch expert-led content on various aspects of the condition, from diagnosis to treatment, to deepen your understanding and stay informed.

Featured Product

Gray Run Shirt

FLASH SALE:  Get this shirt for $15.00 while supplies last! Wear our shirt and increase amyloidosis awareness in your community!  50% cotton, 50% polyester Color: Gray
$15.00
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Our Latest Webinar

The Changing Paradigm of Amyloidosis Treatment

Jeffrey Zonder, MD

Karmanos Cancer Institute, Detroit, MI

July 10, 2025

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