2026 Summer Newsletter
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AL Amyloidosis
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Hereditary Amyloidosis
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The Amyloidosis Channel
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Patient Education Activity
Read More HereWhat is Amyloidosis?
AMYLOIDOSIS is a term that represents several different types of diseases where an abnormal protein called amyloid is produced. These amyloid protein fibers can attach and deposit into organs, tissues, nerves, and other places in the body. When that happens, normal function of the area can be affected. As the amyloid protein increases, health problems and organ damage may occur. “OSIS” means increased, or an abnormal, supply of AMYLOID protein.
Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.
Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.
Featured Patient Story
My hTTR-PN Journey
Tisha Downing
About a year ago, my health took a sudden and frightening turn.
I had been living with Ehlers-Danlos Syndrome (EDS) and POTS, so I was no stranger to chronic illness. But this felt different. My symptoms quickly escalated beyond anything I had experienced before.
I fainted in my bathroom, resulting in a minor concussion. My shortness of breath became so...
Read the Full StoryLatest Headlines
Protego Announces FDA IND Clearance for Phase 2/3 Study of PROT-001 in AL Amyloidosis
October 20, 2026
Oct 19, 2026, 07:01 ET
– Clearance enables initiation of SHIELD-AL, a pivotal study in newly diagnosed patients with lambda AL amyloidosis
– Investigational oral light chain stabilizer to be evaluated as an add-on to standard-of-care plasma cell-directed therapy
SAN...
Calendar & Upcoming Events
Webinar: Don’t Pass on Your Heart Health
Webinar: Don’t Pass on Your Heart Health
Real Stories. Real Talk. Recognizing ATTR-CM
When: October 6th at 6:00pm EST
Click the link to view the live webinar: https://www.youtube.com/watch?v=d4FWyj6dBDI
Webinar: Helping Connect the Dots: A Caregiver’s Guide to ATTR Amyloidosis
Webinar: Helping Connect the Dots: A Caregiver’s Guide to ATTR Amyloidosis
Click the link for more details and to register: https://www.caregiveraction.org/amyloidosis-attr/
Navigating Healthcare with Amyloidosis
Webinar: Navigating Healthcare with Amyloidosis
Triage Health is offering FREE webinars that will provide practical information for individuals diagnosed with amyloidosis and their caregivers on navigating health insurance and access to care. Topics will include health insurance options, including Medicare, making enrollment decisions, accessing second opinions, and strategies to address barriers to care.
The webinars will be offered both virtually and in person in three locations:
October 26 – Buffalo, New York
October 28 – Houston, Texas
October 29 – Orlando, Florida
You can learn more and register here: https://triagehealth.org/Amyloidosis/
Amyloidosis Videos
This section features a collection of informative videos that provide valuable insights into amyloidosis. Watch expert-led content on various aspects of the condition, from diagnosis to treatment, to deepen your understanding and stay informed.
Featured Product
Champion T-Shirt
Wear our shirt and increase amyloidosis awareness in your community! 50% cotton, 50% polyester Color: Dark Gray
Wear our shirt and increase amyloidosis awareness in your community! 50% cotton, 50% polyester Color: Dark Gray
$25.00
S, XL, and XXL