2026 Fall Newsletter
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AL Amyloidosis
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Amyloidosis Awareness Items
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Hereditary Amyloidosis
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The Amyloidosis Channel
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Patient Education Activity
Read More HereWhat is Amyloidosis?
AMYLOIDOSIS is a term that represents several different types of diseases where an abnormal protein called amyloid is produced. These amyloid protein fibers can attach and deposit into organs, tissues, nerves, and other places in the body. When that happens, normal function of the area can be affected. As the amyloid protein increases, health problems and organ damage may occur. “OSIS” means increased, or an abnormal, supply of AMYLOID protein.
Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.
Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.
Featured Patient Story
My hTTR-PN Journey
Tisha Downing
About a year ago, my health took a sudden and frightening turn.
I had been living with Ehlers-Danlos Syndrome (EDS) and POTS, so I was no stranger to chronic illness. But this felt different. My symptoms quickly escalated beyond anything I had experienced before.
I fainted in my bathroom, resulting in a minor concussion. My shortness of breath became so...
Read the Full StoryLatest Headlines
2026 Fall Newsletter
November 13, 2026
Our latest Fall Newsletter is here!
Catch up on the latest Amyloidosis Foundation news, upcoming events, and ways you can get involved. We hope you’ll take a few minutes to check it out and stay connected with everything happening this...
Calendar & Upcoming Events
Giving Tuesday
#𝙂𝙞𝙫𝙞𝙣𝙜𝙏𝙪𝙚𝙨𝙙𝙖𝙮 is a global day dedicated to generosity and making a real difference.
The Amyloidosis Foundation is working to raise $20,000 to fund vital research, support patients and families, and spread awareness about amyloidosis.
How You Can Help
• 𝐌𝐚𝐤𝐞 𝐚 𝐃𝐨𝐧𝐚𝐭𝐢𝐨𝐧: Every gift—big or small—helps drive research forward and brings hope to those affected by rare diseases. You can contribute directly through the Amyloidosis Foundation dedicated link here: GIVE HERE
• 𝐒𝐩𝐫𝐞𝐚𝐝 𝐭𝐡𝐞 𝐖𝐨𝐫𝐝: Share this post, tag the Amyloidosis Foundation, and use #GivingTuesday and #AmyloidosisResearch to help amplify the mission.
Together, your kindness and generosity can change lives
Tipping Points in AL and ATTR
Webinar: Tipping Points in AL and ATTR
(These sessions will not be recorded due to patient involvement and HIPAA laws)
For more information on this and upcoming webinars click HERE
Navigating the Holidays While Living with a Rare or Chronic Illness
Webinar: Navigating the Holidays While Living with a Rare or Chronic Illness
(These sessions will not be recorded due to patient involvement and HIPAA laws)
For more information on this and upcoming webinars click HERE
Amyloidosis Videos
This section features a collection of informative videos that provide valuable insights into amyloidosis. Watch expert-led content on various aspects of the condition, from diagnosis to treatment, to deepen your understanding and stay informed.
Featured Product
Notecards
Unique, printed to order notecards. The image represents a quilt; each quilt block was beautifully created by someone living with amyloidosis. 12 notecards and envelopes
$15.00