7151 N. Main St. Ste. 2 Clarkston, MI 48346
248-922-9610

2026 Winter Newsletter

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LTN Info and Toolkit

AL Amyloidosis

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Amyloidosis Awareness Items

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Hereditary Amyloidosis

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The Amyloidosis Channel

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Patient Education Activity

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What is Amyloidosis?

AMYLOIDOSIS is a term that represents several different types of diseases where an abnormal protein called amyloid is produced. These amyloid protein fibers can attach and deposit into organs, tissues, nerves, and other places in the body. When that happens, normal function of the area can be affected. As the amyloid protein increases, health problems and organ damage may occur. “OSIS” means increased, or an abnormal, supply of AMYLOID protein.

Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.

Featured Patient Story

My AL Saga

Susan MacMillan

In 2003 at age 51, my ECG showed enough of a change to indicate having a stress/echo exercise test. During the course of the test, my ECG became very abnormal, with deeply inverted T-waves. The cardiologist diagnosed restrictive cardiomyopathy. He was very perplexed about why a 51 year old female would develop this. What he did not consider was amyloidosis....
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Latest Headlines

2026 Winter Newsletter

January 15, 2026

Be sure to catch up on the latest happenings in our winter newsletter here!

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Calendar & Upcoming Events

Facing Fear & Pain in Amyloidosis: How to Take Back Control and Shorten the Storm

When


April 1, 2026    

6:00 pm - 6:45 pm

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Webinar Session: Wednesday, April 1st at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

Speaker: Cath Jayasuriya, Presenter

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5 (more) Things every amyloidosis patient needs to know

When


March 25, 2026    

6:00 pm - 6:45 pm

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Webinar Session: Wednesday, March 25th at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

5 (more) Things every amyloidosis patient needs to know

Speaker: Dr. Stacey Goodman, Hematologist

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Heart in Sync: The Role of Medical Devices in Amyloid Cardiomyopathy

When


February 25, 2026    

6:00 pm - 6:45 pm

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Webinar Session: Wednesday, February 25th at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

Speaker: Dr. Roy John, Cardiologist, Stanford Medicine

View Details

Amyloidosis Videos

This section features a collection of informative videos that provide valuable insights into amyloidosis. Watch expert-led content on various aspects of the condition, from diagnosis to treatment, to deepen your understanding and stay informed.

Featured Product

Zebra T Shirt

FLASH SALE:  Pick up our Zebra Shirt for $15.00 while supplies last! Wear our zebra logo shirt and increase amyloidosis awareness in your community! 50% cotton, 50% polyester
$15.00
S and M

Our Latest Webinar

The Changing Paradigm of Amyloidosis Treatment

Jeffrey Zonder, MD

Karmanos Cancer Institute, Detroit, MI

July 10, 2025

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