Featured Patient Story
Lou Catania
There is no greater reminder that we should cherish moments than nearly dying. A close call with death ensures that we become much more aware of what we have, what we need, and what we might miss. We were extremely aware this past July, that this year marked 20 years since we wallowed in fear, self pity and continual illness. Lou was a married 42-year-old healthy father of 3, with a house, a couple of cars, and a great job. And then, he was sick. It just wasn’t the way it was supposed to be.
read moreLatest News Story Headlines
Ultromics granted FDA Breakthrough Device Designation for AI-enhanced Cardiac Amyloidosis detection
| By Ultromics
NEURO-TTRansform Phase III results presented at AAN showed eplontersen demonstrated consistent and sustained improvement in all measures of disease and quality of life through 66 weeks
Calendar & Upcoming Events
Nashville Support Group Meeting
When: June 3, 2023
Time: 12:00 - 2:00 pm
Maggiano's Little Italy Restaurant 3106 W End Ave Nashville, TN
Support Group Meeting - St. Louis, MO
This support group will meet from 1:00 – 3:00 pm on the following dates in the St. Louis area.
Support Group Meeting - New York
The Weill Cornell Medicine Center holds free amyloidosis support group meetings virtually every month. These groups are led by a medical oncology
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Featured Product
Ribbon Awareness Pin$8.00Wear your pin proudly and show everyone you are an amyloidosis ambassador.
Shipping :Tax and shipping included. Shipped within one business day of order.
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Featured Product
NEW – Gray Logo T Shirt$25.00Wear our shirt and increase amyloidosis awareness in our community!
50% cotton, 50% polyester Color: Gray – a small logo on the front side; “You are Strong” wording on the back side.
Available sizes : S, M, L, XL, XXLShipping :Tax and shipping included. Shipped within one business day of order.
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Featured Product
Zebra T Shirt$25.00Wear our zebra logo shirt and increase amyloidosis awareness in your community!
50% cotton, 50% polyester.
Available sizes : S, M, L, XL, XXLShipping :Tax and shipping included. Shipped within one business day of order.
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Featured Product
Logo T Shirt$25.00Wear our shirt and increase amyloidosis awareness in your community!
50% cotton, 50% polyester.
Available sizes : S, M, L, XL, XXLShipping :Tax and shipping included. Shipped within one business day of order.
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UPDATES IN ATTR CARDIAC AND NEUROLOGICAL AMYLOIDOSIS: What's new and exciting for 2022 and beyond
Frederick L. Ruberg, MD, Omar K. Siddiqi, MD, K. H. Vincent Lau, and Michelle Kaku, MD – Boston Medical Center/Boston University – Boston, MA
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