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Lou Catania

Featured Patient Story

Lou Catania

There is no greater reminder that we should cherish moments than nearly dying. A close call with death ensures that we become much more aware of what we have, what we need, and what we might miss. We were extremely aware this past July, that this year marked 20 years since we wallowed in fear, self pity and continual illness. Lou was a married 42-year-old healthy father of 3, with a house, a couple of cars, and a great job. And then, he was sick. It just wasn’t the way it was supposed to be.

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Latest News Story Headlines

Amyloid Removal Looks Possible in ATTR Cardiomyopathy Imaging Trial

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Ultromics granted FDA Breakthrough Device Designation for AI-enhanced Cardiac Amyloidosis detection

| By Ultromics

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NEURO-TTRansform Phase III results presented at AAN showed eplontersen demonstrated consistent and sustained improvement in all measures of disease and quality of life through 66 weeks

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Calendar & Upcoming Events

Nashville Support Group Meeting

When:  June 3, 2023

Time:  12:00 - 2:00 pm

Maggiano's Little Italy Restaurant  3106 W End Ave  Nashville, TN 

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Support Group Meeting - St. Louis, MO

This support group will meet from 1:00 – 3:00 pm on the following dates in the St. Louis area.

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Support Group Meeting - New York

The Weill Cornell Medicine Center holds free amyloidosis support group meetings virtually every month.  These groups are led by a medical oncology

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Amyloidosis Videos

Our Latest Webinar

UPDATES IN ATTR CARDIAC AND NEUROLOGICAL AMYLOIDOSIS: What's new and exciting for 2022 and beyond

Frederick L. Ruberg, MD, Omar K. Siddiqi, MD, K. H. Vincent Lau, and Michelle Kaku, MD – Boston Medical Center/Boston University – Boston, MA

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