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Hereditary
Amyloidosis
Amyloidosis
Get the facts here for your family
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Featured Patient Story
Lou Catania
There is no greater reminder that we should cherish moments than nearly dying. A close call with death ensures that we become much more aware of what we have, what we need, and what we might miss. We were extremely aware this past July, that this year marked 20 years since we wallowed in fear, self pity and continual illness. Lou was a married 42-year-old healthy father of 3, with a house, a couple of cars, and a great job. And then, he was sick. It just wasn’t the way it was supposed to be.
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2024 Fall Newsletter
Be sure to catch up on the latest happenings in our fall newsletter.
Alnylam Presents Detailed Results from the Positive HELIOS-B Phase 3 Study of Vutrisiran▼ in Patients with ATTR Amyloidosis with Cardiomyopathy at the European Society of Cardiology Congress
CAMBRIDGE, Mass.--(BUSINESS WIRE)--Aug.
Alnylam Reports Positive Topline Results from HELIOS-B Phase 3 Study of Vutrisiran, Achieving Statistical Significance on Primary and All Secondary Endpoints in Both Overall and Monotherapy Populations
Jun 24, 2024
Calendar & Upcoming Events
Webinar: Breaking negative thought loops
Webinar Session, Wednesday, October 9, 2024 at 6 PM (ET)
Webinar: Accessing your medical records with MyChart
Webinar Session, Wednesday, October 16, 2024 at 6 PM (ET)
Webinar: Updates in AL amyloidosis: Fast Forward in 2024!
Webinar: Updates in AL amyloidosis: Fast Forward in 2024!
Speaker: Dr. Heather Landau, MD Memorial Sloan Kettering Cancer Center
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Featured Product
Ribbon Awareness Pin$8.00Wear your pin proudly and show everyone you are an amyloidosis ambassador.
Shipping :Tax and shipping included. Shipped within one business day of order.
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Featured Product
Gray Logo T Shirt$15.00** FLASH SALE - WHILE SUPPLIES LAST ** Wear our shirt and increase amyloidosis awareness in our community!
50% cotton, 50% polyester Color: Gray – a small logo on the front side; “You are Strong” wording on the back side.
*** Please note: Medium and Large sizes are SOLD OUT. ***
Available sizes : S, XXLShipping :Tax and US shipping included. Shipped within one business day of order.
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Featured Product
Zebra T Shirt$25.00Wear our zebra logo shirt and increase amyloidosis awareness in your community!
50% cotton, 50% polyester.
Available sizes : S, M, L, XL, XXLShipping :Tax and US shipping included. Shipped within one business day of order.
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Featured Product
Logo T Shirt$25.00Wear our shirt and increase amyloidosis awareness in your community!
50% cotton, 50% polyester.
Available sizes : S, M, L, XL, XXLShipping :Tax and US shipping included. Shipped within one business day of order.
Our Latest Webinar
UPDATES IN ATTR CARDIAC AMYLOIDOSIS: What's new and exciting for 2024
Frederick L. Ruberg, MD, Omar K. Siddiqi, MD – Boston Medical Center/Boston University – Boston, MA
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