7151 N. Main St. Ste. 2 Clarkston, MI 48346
248-922-9610

2026 Winter Newsletter

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LTN Info and Toolkit

AL Amyloidosis

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Amyloidosis Awareness Items

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Hereditary Amyloidosis

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The Amyloidosis Channel

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Patient Education Activity

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What is Amyloidosis?

AMYLOIDOSIS is a term that represents several different types of diseases where an abnormal protein called amyloid is produced. These amyloid protein fibers can attach and deposit into organs, tissues, nerves, and other places in the body. When that happens, normal function of the area can be affected. As the amyloid protein increases, health problems and organ damage may occur. “OSIS” means increased, or an abnormal, supply of AMYLOID protein.

Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.

Featured Patient Story

My Journey with Amyloidosis: Turning Fear into Purpose

Faye Adams

Amyloidosis is a word I wish I’d never had to learn. Between its many forms—like transthyretin cardiac amyloidosis (ATTR-CM), hereditary ATTR (hATTR), and AL amyloidosis—the medical jargon can feel like a foreign language. But for me, it’s personal. This disease claimed my father’s life in 2010, and a decade later, it changed mine. My name is Faye. I’m a wife,...
Read the Full Story

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2026 Winter Newsletter

January 15, 2026

Be sure to catch up on the latest happenings in our winter newsletter here!

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Calendar & Upcoming Events

Facing Fear & Pain in Amyloidosis: How to Take Back Control and Shorten the Storm

When


April 1, 2026    

6:00 pm - 6:45 pm

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Webinar Session: Wednesday, April 1st at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

Speaker: Cath Jayasuriya, Presenter

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5 (more) Things every amyloidosis patient needs to know

When


March 25, 2026    

6:00 pm - 6:45 pm

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Webinar Session: Wednesday, March 25th at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

5 (more) Things every amyloidosis patient needs to know

Speaker: Dr. Stacey Goodman, Hematologist

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Heart in Sync: The Role of Medical Devices in Amyloid Cardiomyopathy

When


February 25, 2026    

6:00 pm - 6:45 pm

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Webinar Session: Wednesday, February 25th at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

Speaker: Dr. Roy John, Cardiologist, Stanford Medicine

View Details

Amyloidosis Videos

This section features a collection of informative videos that provide valuable insights into amyloidosis. Watch expert-led content on various aspects of the condition, from diagnosis to treatment, to deepen your understanding and stay informed.

Featured Product

Ribbon Awareness Pin

Wear your pin proudly and show everyone you are an amyloidosis ambassador.
$8.00

Our Latest Webinar

The Changing Paradigm of Amyloidosis Treatment

Jeffrey Zonder, MD

Karmanos Cancer Institute, Detroit, MI

July 10, 2025

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