Amyloidosis Patient Profile: How I Changed My Life for the Better After Receiving an Amyloidosis Diagnosis

Speaker:  Alison Keenan : I am a Registered Nurse, diagnosed with AL in 2014. I has an Autologous Stem Cell Transplant in 2015 after receiving CyBorD chemotherapy. I have had impact to my kidneys specifically. I have appreciated Total Response for the last 9 years but have recently experienced a slight increase in my light chains with a decrease in my EGFR. I am on every 3 month lab value observation hoping to avoid further chemo. I am an active advocate in increasing awareness of AL and attend a support group in Nashville. My transplant was done at Froedtert and Medical College of Wisconsin and then I moved to Tennessee 3 years later and get care thru Vanderbilt. I am an Educator/Evaluator for Intermountain Therapy Animals and have a Therapy Dog Team. I am author of a children’s book about my Therapy Animal.