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TZID:America/Detroit
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UID:35@amyloidosis.org
DTSTART;TZID=America/Chicago:20260513T180000
DTEND;TZID=America/Chicago:20260513T184500
DTSTAMP:20260512T144626Z
URL:https://amyloidosis.org/events/amyloidosis-patient-profile-how-i-chang
 ed-my-life-for-the-better-after-receiving-an-amyloidosis-diagnosis/
SUMMARY:Amyloidosis Patient Profile: How I Changed My Life for the Better A
 fter Receiving an Amyloidosis Diagnosis
DESCRIPTION:Webinar Session: Wednesday\, May 13 at 6 PM (ET) Zoom Meeting\n
 \n(These sessions will not be recorded due to patient involvement and HIPA
 A laws)\n\nTo Register HERE\nAmyloidosis Patient Profile: How I Changed M
 y Life for the Better After Receiving an Amyloidosis Diagnosis\n\n\n\nSpea
 ker:  Alison Keenan : I am a Registered Nurse\, diagnosed with AL in 2014
 . I has an Autologous Stem Cell Transplant in 2015 after receiving CyBorD 
 chemotherapy. I have had impact to my kidneys specifically. I have appreci
 ated Total Response for the last 9 years but have recently experienced a s
 light increase in my light chains with a decrease in my EGFR. I am on ever
 y 3 month lab value observation hoping to avoid further chemo. I am an act
 ive advocate in increasing awareness of AL and attend a support group in N
 ashville. My transplant was done at Froedtert and Medical College of Wisco
 nsin and then I moved to Tennessee 3 years later and get care thru Vanderb
 ilt. I am an Educator/Evaluator for Intermountain Therapy Animals and have
  a Therapy Dog Team. I am author of a children's book about my Therapy Ani
 mal.\n\n\n\n
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TZID:America/Chicago
X-LIC-LOCATION:America/Chicago
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DTSTART:20260308T030000
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