Featured Patient Story
Edgar Baxton II
Edgar Baxton, 65, is a health teacher at the Fort Dodge Middle School in Fort Dodge, Iowa. He also coaches junior varsity volleyball at Fort Dodge Senior High. He was diagnosed with amyloidosis in 2015 and needed a heart and liver transplant to save him.
What transpired through his medical journey was a true out-of-body experience that changed his life physically, mentally and spiritually, according to Baxton.
“It makes you become very aware that there is more to life than what we have right here,” Baxton said. “Everybody wants to live today, but there is a life beyond this life.”
read moreLatest News Story Headlines
WAINUA (eplontersen) granted first-ever regulatory approval in the US for the treatment of adults with polyneuropathy of hereditary transthyretin-mediated amyloidosis
December 21, 2023
2023 Fall Newsletter
Be sure to catch up on the latest happenings in our fall newsletter.
Calendar & Upcoming Events
Support Group Meeting - New York
The Weill Cornell Medicine Center holds free amyloidosis support group meetings virtually every month. These groups are led by a medical oncology
WEBINAR: What is new and exciting in ATTR cardiac amyloidosis 2024
What's new and exciting in ATTR cardiac amyloidosis 2024 Webinar - April 29th - 3:00 pm ET
WEBINAR - Treating Amyloidosis – insights from specialist center experts
WEBINAR
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Featured Product
Ribbon Awareness Pin$8.00Wear your pin proudly and show everyone you are an amyloidosis ambassador.
Shipping :Tax and shipping included. Shipped within one business day of order.
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Featured Product
Gray Logo T Shirt$15.00** FLASH SALE - WHILE SUPPLIES LAST ** Wear our shirt and increase amyloidosis awareness in our community!
50% cotton, 50% polyester Color: Gray – a small logo on the front side; “You are Strong” wording on the back side.
*** Please note: Medium and Large sizes are SOLD OUT. ***
Available sizes : S, XL, XXLShipping :Tax and US shipping included. Shipped within one business day of order.
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Featured Product
Zebra T Shirt$25.00Wear our zebra logo shirt and increase amyloidosis awareness in your community!
50% cotton, 50% polyester.
Available sizes : S, M, L, XL, XXLShipping :Tax and US shipping included. Shipped within one business day of order.
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Featured Product
Logo T Shirt$25.00Wear our shirt and increase amyloidosis awareness in your community!
50% cotton, 50% polyester.
Available sizes : S, M, L, XL, XXLShipping :Tax and US shipping included. Shipped within one business day of order.
Our Latest Webinar
Beyond Standard of Care Treatment for Light Chain (AL) Amyloidosis: The Promise of Tomorrow
Heather Landau, MD - Memorial Sloan Kettering Cancer Center - New York, NY
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