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2025 Fall Newsletter

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AL Amyloidosis

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Amyloidosis Awareness Items

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Hereditary Amyloidosis

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The Amyloidosis Channel

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Patient Education Activity

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What is Amyloidosis?

AMYLOIDOSIS is a term that represents several different types of diseases where an abnormal protein called amyloid is produced. These amyloid protein fibers can attach and deposit into organs, tissues, nerves, and other places in the body. When that happens, normal function of the area can be affected. As the amyloid protein increases, health problems and organ damage may occur. “OSIS” means increased, or an abnormal, supply of AMYLOID protein.

Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.

Featured Patient Story

As we look toward the future

Glenn Dale Galloway

In May of 2012, my father received a diagnosis that no one saw coming: Heavy Chain Amyloidosis. He had been sick for years, decades even. He had atherosclerotic plaques throughout his heart and carotid arteries and suffered GI symptoms that would cause severe bleeding and nausea. I remember my father being sick for most of my life, but despite his...
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Latest Headlines

Efficacy of Acoramidis in Wild-Type and Variant Transthyretin Amyloid CardiomyopathyResults From ATTRibute-CM and Its Open-Label Extension

November 12, 2025

JAMA Cardiol

Published Online: November 8, 2025

Today at the AHA congress in New Orleans, BridgeBio presented data showing that acoramidis significantly reduces all-cause mortality (through month 42) in people living with hereditary ATTR-CM population, with specific benefit noted in those living with...

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Calendar & Upcoming Events

Looking Back at 2025 and Preparing for what’s next in 2026

When


December 24, 2025    

6:00 pm - 6:45 pm

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Webinar Session: Wednesday, December 24th, 2025 at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

Speaker: Dr. Stacey Goodman, Vanderbilt University

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Living Forward with Amyloidosis: Practical tips that make a difference

When


December 17, 2025    

6:00 pm - 6:45 pm

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Webinar Session: Wednesday, December 17th, 2025 at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

Speaker: Sally Cox, AL amyloidosis patient and leader of the Pacific NW Amyloidosis Support Group

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Webinar: Heart Failure in Amyloidosis: Recognizing Symptoms and Taking Action

When


December 3, 2025    

6:00 pm - 6:45 pm

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Webinar Session: Wednesday, December 3rd, 2025 at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

Speaker: Dr. Nitasha Sarswat, cardiologist at UChicago Medicine

 

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Amyloidosis Videos

This section features a collection of informative videos that provide valuable insights into amyloidosis. Watch expert-led content on various aspects of the condition, from diagnosis to treatment, to deepen your understanding and stay informed.

Featured Product

Notecards

Unique, printed to order notecards. The image represents a quilt; each quilt block was beautifully created by someone living with amyloidosis. 12 notecards and envelopes
$15.00

Our Latest Webinar

The Changing Paradigm of Amyloidosis Treatment

Jeffrey Zonder, MD

Karmanos Cancer Institute, Detroit, MI

July 10, 2025

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