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AL Amyloidosis

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Webinar: Updates in AL Amyloidosis

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Hereditary Amyloidosis

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What is Amyloidosis?

AMYLOIDOSIS is a term that represents several different types of diseases where an abnormal protein called amyloid is produced. These amyloid protein fibers can attach and deposit into organs, tissues, nerves, and other places in the body. When that happens, normal function of the area can be affected. As the amyloid protein increases, health problems and organ damage may occur. “OSIS” means increased, or an abnormal, supply of AMYLOID protein.

Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.

Featured Patient Story

Making a Difference

Mackenzie Boedicker

In April of 2017, I was diagnosed at the age of 23 with AL amyloidosis. I noticed a lump in the back of my throat that had been increasing in size. I saw an ENT who incorrectly diagnosed the lump as seasonal allergies. A second ENT eventually did a biopsy of the lump and the results indicated that the tissue...
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2025 Spring Newsletter

May 21, 2025

Be sure to catch up on the latest happenings in our fall newsletter here!

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Calendar & Upcoming Events

Webinar: Office Hours: Dr. Mazen Hanna Cardiologist from the Cleveland Clinic

When


October 8, 2025    

6:00 pm - 7:00 pm

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Webinar Session: Wednesday, October 8, 2025 at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

Office Hours: Dr. Mazen Hanna Cardiologist from the Cleveland Clinic

Speaker: Mazen Hanna, MD, Cardiology, Cleveland Clinic

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Webinar: Open Discussion with Dan Lier

When


September 24, 2025    

6:00 pm - 7:00 pm

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Webinar Session: Wednesday, September 24, 2025 at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

Title:  Open Discussion with Dan Lier

Speaker: Dan Lier, Success Coach

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Webinar: Take the mystery out of your cardiology tests

When


September 17, 2025    

6:00 pm - 7:00 pm

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Webinar Session: Wednesday, September 17, 2025 at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

Title:  Take the mystery out of your cardiology tests

Speaker: Julie L. Rosenthal, MD Cardiologist, Mayo Clinic

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Amyloidosis Videos

This section features a collection of informative videos that provide valuable insights into amyloidosis. Watch expert-led content on various aspects of the condition, from diagnosis to treatment, to deepen your understanding and stay informed.

Featured Product

Logo T-Shirt

FLASH SALE:  Pick up our classic T-Shirt for $15.00 while supplies last! Wear our shirt and increase amyloidosis awareness in your community! 50% cotton, 50% polyester.
$15.00
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Our Latest Webinar

The Changing Paradigm of Amyloidosis Treatment

Jeffrey Zonder, MD

Karmanos Cancer Institute, Detroit, MI

July 10, 2025

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