7151 N. Main St. Ste. 2 Clarkston, MI 48346
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GivingTuesday 12/2/2025

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2025 Fall Newsletter

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AL Amyloidosis

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Amyloidosis Awareness Items

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Webinar: Updates in AL Amyloidosis

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Hereditary Amyloidosis

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The Amyloidosis Channel

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Patient Education Activity

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What is Amyloidosis?

AMYLOIDOSIS is a term that represents several different types of diseases where an abnormal protein called amyloid is produced. These amyloid protein fibers can attach and deposit into organs, tissues, nerves, and other places in the body. When that happens, normal function of the area can be affected. As the amyloid protein increases, health problems and organ damage may occur. “OSIS” means increased, or an abnormal, supply of AMYLOID protein.

Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.

Featured Patient Story

My AA Story

Cristina Arroyo

Back in 2015, I went to see my Primary Care Manager several times because of fatigue and feeling feverish (when I didn’t have a fever). My muscles and bones were hurting. I was also retaining water, my feet and ankles were huge. I switched PCM’s around September of 2015 and told her what was going on, how I felt tired...
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2025 Spring Newsletter

May 21, 2025

Be sure to catch up on the latest happenings in our fall newsletter here!

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Calendar & Upcoming Events

Webinar: How Clinical Trials are Changing Amyloidosis Treatment

When


November 5, 2025    

6:00 pm - 6:45 pm

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Webinar Session: Wednesday, November 5th, 2025 at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

How Clinical Trials are Changing Amyloidosis Treatment

Speaker: Dr. Rodney Falk, Cardiologist Brigham Women’s Hospital

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Webinar: Coping with Chronic Disease Life Challenges

When


October 29, 2025    

6:00 pm - 7:45 pm

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Webinar Session: Wednesday, October 29, 2025 at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

Coping with Chronic Disease Life Challenges

Speaker:  Tom Bartlett, Digital Patient Advocate

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Webinar: From Super Bowl Champ to Rare Disease Advocacy

When


October 22, 2025    

6:00 pm - 6:45 pm

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Webinar Session: Wednesday, October 22, 2025 at 6 PM (ET) Zoom Meeting

(These sessions will not be recorded due to patient involvement and HIPAA laws)

To Register HERE

From Super Bowl Champ to Rare Disease Advocacy

Speaker: Art Still, KC Chiefs & Still4Life.org

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Amyloidosis Videos

This section features a collection of informative videos that provide valuable insights into amyloidosis. Watch expert-led content on various aspects of the condition, from diagnosis to treatment, to deepen your understanding and stay informed.

Featured Product

Zebra T Shirt

FLASH SALE:  Pick up our Zebra Shirt for $15.00 while supplies last! Wear our zebra logo shirt and increase amyloidosis awareness in your community! 50% cotton, 50% polyester
$15.00
S and M

Our Latest Webinar

The Changing Paradigm of Amyloidosis Treatment

Jeffrey Zonder, MD

Karmanos Cancer Institute, Detroit, MI

July 10, 2025

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