Making a Difference

 

Mackenzie Boedicker

In April of 2017, I was diagnosed at the age of 23 with AL amyloidosis.

I noticed a lump in the back of my throat that had been increasing in size. I saw an ENT who incorrectly diagnosed the lump as seasonal allergies. A second ENT eventually did a biopsy of the lump and the results indicated that the tissue had characteristics of amyloid. I was referred to a hematologist who performed a bone marrow biopsy and confirmed the diagnosis. For a second opinion, I met with an amyloidosis specialist at the Mayo Clinic in Rochester, MN.

In July 2017, I spent a total of five weeks at Mayo undergoing treatment, involving an autologous stem cell transplant with high-dose chemotherapy. At my post-transplant (Day +18) exit appointment, my doctor informed me that I had achieved a complete response to therapy and that there was no evidence of amyloidosis anywhere in my body. These results were confirmed at my “Day +100” follow-up visit. I was officially disease-free!

Now many years later, I continue to feel strong and full of energy. I currently live in Boston and keep busy by studying to be a physician assistant. In addition, I spend my free time exploring all of the incredible places the world has to offer. 

Much lies ahead in my journey through life, both on the path to becoming a PA, and the path to fighting amyloidosis. This disease has shaped my purpose in life. I hope you will join me in the fight by following Mackenzie’s Mission.

Updated: June 2024