Featured Patient Story
Jaime Kaplan
My older sister, Barbara Kaplan, started having shortness of breath in October of 2019. She went to her internist in Miami, Florida, and a chest x-ray which showed fluid in her lungs. Her internist immediately referred her to a cardiologist who suspected amyloidosis. She was diagnosed a few days later and was started on Vyndamax shortly after. Her 3 siblings were advised to get tested for the gene. Our two brothers were quickly tested and both were deemed negative. Our mother was tested and is negative as well. Our dad is deceased.
read moreLatest News Story Headlines
Alnylam Announces U.S. Food and Drug Administration Acceptance of Supplemental New Drug Application for Vutrisiran for the Treatment of ATTR Amyloidosis with Cardiomyopathy
Nov 25, 2024
− Prescription Drug User Fee Act (PDUFA) Date Set for March 23, 2025 −
Attruby™ (acoramidis), a Near Complete TTR Stabilizer (≥90%), approved by FDA to Reduce Cardiovascular Death and Cardiovascular-related Hospitalization in ATTR-CM Patients
11.22.2024 at 7:12 PM EST
Intellia Announces First Clinical Evidence from Ongoing Phase 1 Study that Nexiguran Ziclumeran (nex-z), an In Vivo CRISPR/Cas9-Based Gene Editing Therapy, May Favorably Impact Disease Progression in Transthyretin (ATTR) Amyloidosis
CAMBRIDGE, Mass., Nov. 16, 2024 (GLOBE NEWSWIRE) -- Intellia Therapeutics, Inc.
Calendar & Upcoming Events
Office Closed
Our office will be closed on December 24th and 25th for the Holiday.
Office Closed
Webinar: Kicking off your new year right!
Webinar Session, Wednesday, Jan. 1st, 2025 at 6 PM (ET)
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Featured Product
Ribbon Awareness Pin$8.00Wear your pin proudly and show everyone you are an amyloidosis ambassador.
Shipping :Tax and shipping included. Shipped within one business day of order.
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Featured Product
Gray Logo T Shirt$15.00** FLASH SALE - WHILE SUPPLIES LAST ** Wear our shirt and increase amyloidosis awareness in our community!
50% cotton, 50% polyester Color: Gray – a small logo on the front side; “You are Strong” wording on the back side.
*** Please note: Medium and Large sizes are SOLD OUT. ***
Available sizes : S, XXLShipping :Tax and US shipping included. Shipped within one business day of order.
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Featured Product
Zebra T Shirt$25.00Wear our zebra logo shirt and increase amyloidosis awareness in your community!
50% cotton, 50% polyester.
Available sizes : S, M, L, XL, XXLShipping :Tax and US shipping included. Shipped within one business day of order.
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Featured Product
Logo T Shirt$25.00Wear our shirt and increase amyloidosis awareness in your community!
50% cotton, 50% polyester.
Available sizes : S, M, L, XL, XXLShipping :Tax and US shipping included. Shipped within one business day of order.
Our Latest Webinar
Updates in AL amyloidosis: Fast Forward in 2024!
Heather Landau, MD - Memorial Sloan Kettering Cancer Center - New York, NY
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