Featured Patient Story
Len Strickland
I am Len Strickland and I was diagnosed with Hereditary Amyloidosis (ATTR) with a variant of Val122ile. There are over 100 different variants of ATTR based on culture and ethnicity. I learned of my affliction at the Mayo Clinic in Rochester, Minnesota on March 29 of 2007.
Hereditary Amyloidosis (ATTR and non-TTR) is a rare type of Amyloidosis that is caused by an abnormal (mutant) gene. Several abnormal or mutant genes can cause hereditary amyloidosis. There are other systemic types as well: AL, AA, and Wild-Type ATTR.
read moreLatest News Story Headlines
WAINUA (eplontersen) granted first-ever regulatory approval in the US for the treatment of adults with polyneuropathy of hereditary transthyretin-mediated amyloidosis
December 21, 2023
2023 Fall Newsletter
Be sure to catch up on the latest happenings in our fall newsletter.
Calendar & Upcoming Events
Support Group Meeting - New York
The Weill Cornell Medicine Center holds free amyloidosis support group meetings virtually every month. These groups are led by a medical oncology
WEBINAR: What is new and exciting in ATTR cardiac amyloidosis 2024
What's new and exciting in ATTR cardiac amyloidosis 2024 Webinar - April 29th - 3:00 pm ET
WEBINAR - Treating Amyloidosis – insights from specialist center experts
WEBINAR
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Featured Product
Ribbon Awareness Pin$8.00Wear your pin proudly and show everyone you are an amyloidosis ambassador.
Shipping :Tax and shipping included. Shipped within one business day of order.
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Featured Product
Gray Logo T Shirt$15.00** FLASH SALE - WHILE SUPPLIES LAST ** Wear our shirt and increase amyloidosis awareness in our community!
50% cotton, 50% polyester Color: Gray – a small logo on the front side; “You are Strong” wording on the back side.
*** Please note: Medium and Large sizes are SOLD OUT. ***
Available sizes : S, XL, XXLShipping :Tax and US shipping included. Shipped within one business day of order.
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Featured Product
Zebra T Shirt$25.00Wear our zebra logo shirt and increase amyloidosis awareness in your community!
50% cotton, 50% polyester.
Available sizes : S, M, L, XL, XXLShipping :Tax and US shipping included. Shipped within one business day of order.
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Featured Product
Logo T Shirt$25.00Wear our shirt and increase amyloidosis awareness in your community!
50% cotton, 50% polyester.
Available sizes : S, M, L, XL, XXLShipping :Tax and US shipping included. Shipped within one business day of order.
Our Latest Webinar
Beyond Standard of Care Treatment for Light Chain (AL) Amyloidosis: The Promise of Tomorrow
Heather Landau, MD - Memorial Sloan Kettering Cancer Center - New York, NY
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