What is Amyloidosis?
AMYLOIDOSIS is a term that represents several different types of diseases where an abnormal protein called amyloid is produced. These amyloid protein fibers can attach and deposit into organs, tissues, nerves, and other places in the body. When that happens, normal function of the area can be affected. As the amyloid protein increases, health problems and organ damage may occur. “OSIS” means increased, or an abnormal, supply of AMYLOID protein.
Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.
Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.
Featured Patient Story
I am Thankful for this Journey

Laura Unnasch
I am a 47-year-old daughter, wife (proudly of 20 years), mother and friend. At the end of 2017, I was having what I thought was an asthmatic flare up and couldn’t sleep at night without a constant cough. When this continued during the daytime and many attempts of medicines and breathing treatments, I just knew something else was going on....
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2025 Spring Newsletter

May 21, 2025
Be sure to catch up on the latest happenings in our fall newsletter here!
Calendar & Upcoming Events
From Super Bowl Champ to Rare Disease Advocacy
Webinar Session: Wednesday, October 22, 2025 at 6 PM (ET) Zoom Meeting
(These sessions will not be recorded due to patient involvement and HIPAA laws)
To Register HERE
From Super Bowl Champ to Rare Disease Advocacy
Speaker: Art Still, KC Chiefs & Still4Life.org
From Policy to Patients: Understanding the Regulatory Process
Webinar Session: Wednesday, October 15, 2025 at 6 PM (ET) Zoom Meeting
(These sessions will not be recorded due to patient involvement and HIPAA laws)
To Register HERE
From Policy to Patients: Understanding the Regulatory Process
Speaker: Kathi Luis, Amyloidosis Foundation
Nashville Support Group
Amyloidosis Videos
This section features a collection of informative videos that provide valuable insights into amyloidosis. Watch expert-led content on various aspects of the condition, from diagnosis to treatment, to deepen your understanding and stay informed.
Featured Product
Logo T-Shirt

FLASH SALE: Pick up our classic T-Shirt for $15.00 while supplies last! Wear our shirt and increase amyloidosis awareness in your community! 50% cotton, 50% polyester.
$15.00
S, M, L, XL, and XXL