What is Amyloidosis?
AMYLOIDOSIS is a term that represents several different types of diseases where an abnormal protein called amyloid is produced. These amyloid protein fibers can attach and deposit into organs, tissues, nerves, and other places in the body. When that happens, normal function of the area can be affected. As the amyloid protein increases, health problems and organ damage may occur. “OSIS” means increased, or an abnormal, supply of AMYLOID protein.
Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.
Most amyloidosis diseases have different treatments; therefore, the correct diagnosis is extremely important.
Featured Patient Story
AL Amyloidosis Diagnosis

Alicia Jackson-Webb
In February 2019, I was diagnosed with AL amyloidosis. My annual mammogram results came back showing a lot of calcification. A biopsy was done on both breasts. The doctor said “Great news no cancer”. But when I read the report for myself, it said that I had amyloid tumors in both breasts with lymphoplasmacytic infiltrates. I went to my PCP...
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2025 Spring Newsletter

May 21, 2025
Be sure to catch up on the latest happenings in our fall newsletter here!
Calendar & Upcoming Events
Nashville Support Group
Webinar: Office Hours: Dr. Mazen Hanna Cardiologist from the Cleveland Clinic
Webinar Session: Wednesday, October 8, 2025 at 6 PM (ET) Zoom Meeting
(These sessions will not be recorded due to patient involvement and HIPAA laws)
To Register HERE
Office Hours: Dr. Mazen Hanna Cardiologist from the Cleveland Clinic
Speaker: Mazen Hanna, MD, Cardiology, Cleveland Clinic
Webinar: Open Discussion with Dan Lier
Webinar Session: Wednesday, September 24, 2025 at 6 PM (ET) Zoom Meeting
(These sessions will not be recorded due to patient involvement and HIPAA laws)
To Register HERE
Title: Open Discussion with Dan Lier
Speaker: Dan Lier, Success Coach
Amyloidosis Videos
This section features a collection of informative videos that provide valuable insights into amyloidosis. Watch expert-led content on various aspects of the condition, from diagnosis to treatment, to deepen your understanding and stay informed.
Featured Product
One day at a time T-Shirt

FLASH SALE: Pick up this shirt for $15.00 while supplies last! Wear our shirt and increase amyloidosis awareness in your community! 100% cotton - heathered oatmeal
$15.00
S, M, L, and XXL