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The Voice of the Patient Was Heard Across Europe

The Voice of the Patient Was Heard Across Europe

The Amyloidosis Research Consortium’s survey, which many of you took part in, is having a far reaching impact. The results were displayed in a poster session recently at the European Hematology Meeting in Vienna. It highlights the many challenges of the amyloidosis community regrding the issues with obtaining a correct diagnosis, supportive information, and tolerating treatment. It also features the need for better treatment and more research. The survey and poster have generated a great deal of interest and they have become a great tool to raise awareness and shape the future of amyloidosis research and education.