box caret-down caret-left caret-right caret-up cart chevron-down chevron-left chevron-right chevron-up closeCreated with Sketch. ContactCreated with Sketch. documentCreated with Sketch. Events facebook feed2 google-plus instagram link linkedin mail NewsCreated with Sketch. NewsletterCreated with Sketch. peopleCreated with Sketch. play-screenCreated with Sketch. playCreated with Sketch. search toolkitCreated with Sketch. twitter vileCreated with Sketch. youtube


Louisiana Passed Resolution to Recognize March as Amyloidosis Awareness Month

Louisiana Passed Resolution to Recognize March as Amyloidosis Awareness Month

Thank you to the efforts of Holly Keene Foret from Baton Rouge, LA who worked with her legislators to pass House Resolution 108, which officially recognizes March as Amyloidosis Awareness month in Lousiana. State Senator Claitor and Representative Steve Carter were instramental in passing this legislation and we thank them for their commitment to the amyloidosis community.

Holly’s father was diagnosed in October 2017 with AL amyloidosis and is currently receiving treatment. She wanted to create this annual month of awareness in her state to share details about this rare disease and increase the chances for earlier diagnosis for patients.

This resolution was signed by John A. Alario, Jr., President of the Senate and Taylor F. Barras, Speaker of the House of Respresentatives.

If you would like help advocating for a similar resolution in your state, please contact us via email: Let’s try and make this a national month for amyloidosis awareness!

Sep 27

Amyloidosis Fundraiser, in Memory of Kevin Sullivan


Oct 13

Run for Your Life! 5k/10k

Independence Oaks County Park

Oct 26

3rd Annual Pittsburgh Research Benefit

Montour Heights Country Club