Today is #GivingTuesday!

Today is #GivingTuesday!

Please support the Amyloidosis Foundation today on this global day of giving. Donate here & share this link with your family and friends on #GivingTuesday.

Thank you.



Great Night at the 2nd Annual Pittsburgh Amyloidosis Research Benefit

Great Night at the 2nd Annual Pittsburgh Amyloidosis Research Benefit

The Pittsburgh community came out strong to support the Amyloidosis Research Benefit for the second year in a row on Friday, October 27. The proceeds from this benefit totaled over $50,000!

The co-chairs for this event, AF board member and patient Darcy B. Tannehill, Ed.D. and her daughter Courtney A. Sullivan, were proud once again to donate these funds to the Amyloidosis Foundation Research Grant Program.

The Montour Heights Country Club hosted the event and over 90 people had a wonderful time enjoying live jazz music and delicious food. Guests participated in the silent auction (with over 80 items), a putting green and wild card contest plus the annual  wine pull (a choice of many beautifully wrapped bottles) which made the night very special. 

We heard patient Darby Yohman talk about his amyloidosis journey and Julie Kowalski, speak about her role as a caregiver for her husband. It was important and very touching to hear how this rare disease has affected their lives and the need to fund research for a cure. Please mark your calendar for next year’s benefit on Friday October 26, 2018! 

Our sponsors made this benefit possible with their generous sponsorships, listed below.


Nashville Support Group Meeting

Nashville Support Group Meeting

This group is for everyone seeking amyloidosis support. We will host a meeting at the Vanderbilt University Medical Center in Nashville on Thursday, December 14, 12:30pm – 2:30pm in room 8380B. This will be a potluck lunch.

RSVP here. Please contact our support group leader, Charlotte Haffner, if you need additional information: charhaffner@gmail.com.

 


Amyloidosis Foundation 5k/10k Runners Finish Strong!

Amyloidosis Foundation 5k/10k Runners Finish Strong!

We are thankful for everyone who participated in the 2017 Amyloidosis Foundation 5k/10k “Run for your life!” event on Saturday, October 21 in Clarkston, MI. The weather was perfect, the course at Independence Oaks County Park was lovely with the leaves in full color and we raised over $5,800!

We had 130 register for the races and runners came from all over Michigan: Traverse City, Grand Rapids, Troy, Royal Oak, Elk Rapids, South Lyon, Crystal Falls and others from Denver, CO and Canada!

We had a large group that attended to honor the memory of Kevin Sullivan, who passed away from amyloidosis. His wife Nancy, daughter Kelsie and sons Connor & Keenan all ran for “Team Kingbee”.

Thanks again to all of our volunteers and sponsors, without your support this event would not have been possible. See you next year!

 

 


The 2nd Annual Pittsburgh Amyloidosis Research Benefit

The 2nd Annual Pittsburgh Amyloidosis Research Benefit

The Amyloidosis Foundation is proud to announce the 2nd Annual Amyloidosis Research Benefit in Pittsburgh, PA on Friday, October 27, 2017. Our goal is to raise donations for the AF Research Grant Program. Since 2005, the foundation has awarded over $1.4 million to young researchers pursuing a cure for amyloidosis. Dr. Darcy Tannehill, amyloidosis patient, Pittsburgh resident and member of the Amyloidosis Foundation Board of Directors, is the Chairwoman for our fundraiser.

The event will be at the Montour Heights Country Club starting at 5:30pm. The evening will include strolling appetizers, dinner, live music, cash bar and a silent auction. Proceeds from this event will allow us to continue our support for ground-breaking medical research.

Join us on this special night as we raise funds for research and celebrate our amyloidosis community.

Tickets are $175 and we have tables of eight for $1400, click here to purchase. Event sponsorships are also available, please use this link.

 

Hotel reservation information

Sheraton Pittsburgh Airport, 1160 Thorn Run Road, Coraopolis, PA  15108

Phone: 412-262-2400 (hotel) or 866-716-8134 (reservations)

The hotel is 5 minutes from the event and there is a  complimentary shuttle to the benefit.

 

Contact                  

For more information, please contact the Amyloidosis Foundation at 1-877-AMYLOID.

Purchase tickets here

Special thanks to our event sponsors:


Hills and Hollers Half Marathon & 5K

Hills and Hollers Half Marathon & 5K

Join us at the 5th annual Hills and Hollers Half Marathon & 5K on Saturday, November 11 at the Burwood Community Center in Thompson’s Station, TN. This event supports amyloidosis patients and their families. This is a great event for the whole family – they even have a Little Holler Run! After the races, participants will enjoy refreshments while bidding on items in the silent auction.

Present Troubles Racing (a nonprofit organization) runs the event and raises funds by organizing multi-sport events (triathlons, duathlons, marathons, 1/2 marathons, bike rides, etc) in Tennessee. It is their goal to make others aware of this disease and raise financial support to help those affected by amyloidosis.  All funds raised will be split between the Amyloidosis Foundation, local Amyloidosis Foundation Support Groups, and Vanderbilt Amyloidosis Multidisciplinary Program patients. Thank you to Prothena for sponsoring this event.

Register here.

 


“Run for Your Life!” – Walk/Run

“Run for Your Life!” – Walk/Run

We cordially invite you to participate in the Amyloidosis Foundation Run for Your Life! 5k/10k Walk/Run. This event will raise money to provide medical research and will help fund programs that benefit amyloidosis patients and their families.

**ONLINE registration has ended – you can register at the event with cash, check or credit card. Please arrive early to complete the forms.**

The event will be held Saturday, October 21, 2017 at Independence Oaks County Park in Clarkston, MI. The 10k will kick off at 9:30 a.m. followed by the 5k at 9:45 a.m. Awards will be given for top qualifiers as well as best costume. Race includes food and drink at the finish line plus Chronotrack timing by Newton Timing & Race Services Company. Dogs and strollers are not allowed are this event.

Register at the event and receive:

  • Run for Your Life! Long sleeve tech shirt
  • Custom medal at the finish

Race Information Links Below:

 

 

 


N. California Support Group Meeting

N. California Support Group Meeting

This support group welcomes all patients, families and friends. They will meet on Saturday, October 21 from 10am – 2pm. The meeting will take place at Stanford, 875 Blake Wilbur Dr., 2nd floor conference room. Refreshments provided.

Please RSVP by October 16 with number attending the meeting here.


Amyloidosis Foundation Announces New Members to Board of Directors

Amyloidosis Foundation Announces New Members to Board of Directors

Sheryl Kernodle, RN has called Vanderbilt Medical Center home for the last seven years, where she has worked as a Cardiac nurse in the Cardio-Oncology, Advanced Heart Failure/Amyloidosis clinic at the Vanderbilt Heart and Vascular Institute in Nashville, TN. She received her nursing degree in 1993 from Aquinas Junior College in Nashville and has over 24 years of experience, with the last 17 focusing on Cardiac sub-specialties.

In 2014, Sheryl was given the opportunity to work with Daniel Lenihan, MD at Vanderbilt as his clinic nurse. Dr. Lenihan (who transferred to Washington University School of Medicine in St. Louis, MO in August 2017) was one of the Cardiologists at VHVI that specialized in the care of patients with amyloidosis. She had never heard of amyloidosis prior to coming to Vanderbilt and was very interested in learning all she could about this rare disease. Dr. Lenihan provided the resource tools needed to become knowledgeable as well as developing the nursing skills needed to care for amyloidosis patients.

Sheryl is currently working on a resource manual for the nursing staff at Vanderbilt, as well as being a representative for Cardio-Oncology in the VHVI Unit Board Charter, where staff members meet monthly to collaboratively make decisions that can improve patient care, clinical practice and enhancement of professional opportunities. She attended the American Association of Nurse Practitioners Conference (AANP) in June 2017 as a volunteer for the Amyloidosis Foundation and looks forward to attending more conferences in the future.

Sheryl joined the Board of Directors of the Amyloidosis Foundation in 2017. She is married and enjoys cooking, gardening and her favorite exercise is walking.

 

Mark Sutherland is a Financial Advisor/ CFP, CRPC with LPL Financial in Southfield, Michigan. He helps his clients identify and plan all aspects of their financial needs – including investments, retirement planning, insurance, and taxes.

Mark attended Michigan State University, where he graduated with a B.A. in Business Administration in 1979.

On campus, he played varsity baseball and helped lead his team to a Big Ten Championship his senior year. He was also an active member of the Psi Upsilon Fraternity.

In 1983 he joined E.F Hutton and earned his securities license. Over the following 34 years of his career, he continued to expand his education by earning his Certified Financial Planner (CFP) designation in 1997 and Chartered Retirement Planning Counselor (CRPC) in 2013.

Mark has supported the Amyloidosis Foundation for many years, attending our annual golf outing events. He began working with AF President Mary O’Donnell and Treasurer Dante Burchi regarding investment recommendations for the foundation since 2015 and became a member of the Board of Directors in 2017.

Mark and his wife Carol have three children and enjoy family outings, golf, volunteering, and following MSU sports.

We welcome Sheryl and Mark to our team and appreciate their support!