Thank You Everyone for Your Support on #GivingTuesday!

Thank You Everyone for Your Support on #GivingTuesday!

The Amyloidosis Foundation is thankful for the amazing generosity from our friends and donors on #GivingTuesday. You helped us surpass our goal of raising $20,000 in 24 hours by soaring past that with close to $30,000 in online donations and Facebook fundraisers.

Over the past 16 years, the Amyloidosis Foundation has been privileged to provide over $1.97 million to medical research for the disease and to support dozens of young investigators who have presented their work at international meetings. We are so very thankful to our donors, to the patients and families and corporate sponsors who have made this effort possible and to our staff, board members and advisors who have led us in these endeavors.

If you would still like to donate, use our online link here.

WebMD Education

WebMD Education

The ABCs of Amyloidosis: The Journey From Diagnosis to Treatment

This article is for people who have amyloidosis, or anyone who wants to learn more about this disease. The goal of this patient education activity is to inform you about amyloidosis, so that you can take a proactive role in your treatment and care.

Click here to be directed to this patient education activity.

“Light the night for amyloidosis” Awareness Campaign

“Light the night for amyloidosis” Awareness Campaign

“Light the night for amyloidosis” is an awareness campaign created to draw attention to amyloidosis symptoms, diagnosis, treatment and hopefully a cure! Since ‘Amyloidosis Awareness Month’ occurs in March, we are asking everyone to light up their porch / entryway with red bulbs for the month of March.

We have also contacted many US landmarks and businesses to do the same in March 2020. Below is a list of the approved requests, along with the date the lighting will occur.

View our growing list here.

We have red light bulbs available for purchase here!  Please join us in our “Light the night for amyloidosis” awareness campaign.

Amyloidosis Foundation Announces 2020 Research Grant Recipients

Amyloidosis Foundation Announces 2020 Research Grant Recipients

We are pleased to announce the funding of three new research projects. The Donald C. Brockman Memorial Research Grant has been awarded to Mark Rank, PhD of Johns Hopkins University. His study revolves around cardiac amyloidosis. The David Seldin, MD, PhD Memorial Research Grant recipient is Susan Bal, MBBS of the University of Alabama-Birmingham. Her study will focus on Light Chain (AL) amyloidosis. The third grant is awarded to Renato Polimanti, PhD of Yale University of Medicine. His research is geared towards wild-type ATTR.

The Amyloidosis Foundation has awarded nearly $2 million to research since the inception of the grant program in 2005.

Congratulations to the recipients!

Giving Tuesday 2019

Giving Tuesday 2019

This year, #GivingTuesday is December 3, 2019.  #GivingTuesday is a global day of giving.  Celebrated on the Tuesday following Thanksgiving and the widely recognized shopping events Black Friday and Cyber Monday.  #GivingTuesday kicks off the charitable season, for holiday and year-end giving.  You have the power to create change!

Please help the Amyloidosis Foundation support research and raise awareness of amyloidosis by donating to #GivingTuesday.

Donate Here

National study seeks earlier diagnosis of ATTR cardiac amyloidosis in minorities

National study seeks earlier diagnosis of ATTR cardiac amyloidosis in minorities


Boston Medical Center and Columbia University Irving Medical Center awarded grant for new trial

BOSTON – Researchers at Boston Medical Center (BMC) and Boston University School of Medicine (BUSM), in collaboration with Columbia University Irving Medical Center (CUIMC), are leading a national, multi-site study aimed to achieve earlier diagnosis of transthyretin cardiac amyloidosis (ATTR-CM). The National Institutes of Health has awarded a five-year, $7.2M grant to fund the Screening for Cardiac Amyloidosis with Nuclear Imaging in Minority Populations (SCAN-MP) trial.

Led by co-principal investigators Frederick L. Ruberg, MD at BMC/BUSM’s Amyloidosis Center of Excellence and Mathew S. Maurer, MD from CUIMC’s Cardiac Amyloidosis Program, the grant will enable the establishment of an important, community-based cohort of older minority patients with congestive heart failure. A total of 800 participants will be recruited from BMC/BUSM in Boston and the CUIMC, NYP-Allen and Harlem Hospitals in New York City.

Read full article here.

3rd Annual Run for Your Life! 5K/10K Run

3rd Annual Run for Your Life! 5K/10K Run

Due to low registration, the ‘Run for Your Life!’ 5K/10K Zombie Run is cancelled. We will contact those already registered to return their registration fee. Sorry for the inconvenience.

Join us on Saturday, September 14, 2019 for our annual Run for your Life! 5K / 10K fundraiser.

First 30 registrants will receive free entry to the park – $16.00 value

Where:  Bald Mountain Recreation Area – 3361 S. Lapeer Rd. Orion Charter Twp, MI  48360

Time:  9:30 am – 10/K starts,  9:45 am – 5/K starts

10K Walk/Run Registration:  $45.00

5K Walk/Run Registration: $35.00

Webinar: Light Chain (AL) Amyloidosis: What is AL Anyway?

Webinar: Light Chain (AL) Amyloidosis:  What is AL Anyway?

Live Webinar Event

Light Chain (AL) Amyloidosis:  What is AL Anyway?

Dr. Heather J. Landau, MD
Associate Attending Physician on the Adult Bone Marrow Transplant and Multiple Myeloma services at Memorial Sloan Kettering (MSK) Cancer Center and Assistant Professor of Medicine at Weill Cornell Medical College.

When:  June 4, 2019
Time:    3:00 PM EDT

Register Here