Amyloidosis Foundation – Knoxville, TN Support Group Meeting

Aug 18

Amyloidosis Foundation – Knoxville, TN Support Group Meeting

August 18, 2018


University of Tennessee, Knoxville


This group is for anyone seeking amyloidosis support. The meeting will be held at the Cancer Institute at the University of Tennessee Medical Center, in Knoxville on Saturday, August 18, from 10:30am – 1:30pm. The address is 1926 Alcoa, Building F. Lunch will be provided.

Lori Apple, with Alnylam Pharmaceuticals, will be speaking about the new advancements in TTR. Please join us and share with anyone else who may benefit from this informative meeting.

**Please RSVP by August 16th to Group Leader Charlotte Haffner:

You may register online for our meetings here.


Amyloidosis Fundraiser in Memory of Kevin Q. Sullivan

Sep 27

Amyloidosis Fundraiser in Memory of Kevin Q. Sullivan

September 27, 2018

6:30pm - 9:30pm

3232 Shaffer Ave. SE, Kentwood, MI 49512


Please join us for a fun and casual evening as we raise money and spread amyloidosis awareness, in memory of KingBee, Kevin Q. Sullivan.  Enjoy hors d’oeuvres along with a cash bar while strolling through this beautifully restored home in Grand Rapids, MI. You’ll have the opportunity to place silent auction bids on some interesting gift baskets and mingle with friends while showing your support for this event.

We look forward to seeing you. 100% of all funds raised will benefit the Amyloidosis Foundation. Don’t wait – purchase your tickets today as this event is sure to sell out!

Click here to purchase tickets.

2nd Annual 5k/10k Walk/Run for Research

Oct 13

2nd Annual 5k/10k Walk/Run for Research

October 13, 2018



We cordially invite you to participate in the second annual Amyloidosis Foundation Run for Your Life! 5k/10k Walk/Run. This event will raise money to provide medical research and will help fund programs that benefit amyloidosis patients and their families.

The event will be held Saturday, October 13, 2018 at Independence Oaks County Park in Clarkston, MI. The 10k will kick off at 9:30 a.m. followed by the 5k at 9:45 a.m. Awards will be given for top qualifiers as well as best costume. Race includes food and drink at the finish line plus Chronotrack timing by Newton Timing & Race Services Company. Unfortunately, dogs and strollers are not allowed are this event.

Register here and receive:

  • Run for Your Life! Long sleeve tech shirt
  • Custom medal at the finish

Race Information Links Below:

Thank you in advance for your support!

Fall Webinar – Amyloidosis 2030: A SyFy Special

Oct 15

Fall Webinar – Amyloidosis 2030: A SyFy Special

October 15, 2018

11am (EST)


Join us on October 15 at 11am (EST) and take a look 12 years into the future at how the risks of AL and ATTR will be managed and the diseases treated. Mark this date on your calendar, you won’t want to miss this event!

The webinar will be hosted by Raymond Comenzo, MD, Professor of Medicine and Pathology at Tufts University School of Medicine.

The presentation will last approximately 45 minutes, then Dr. Comenzo will take questions from the audience. Please share these details with your family and friends to spread amyloidosis awareness.

Register online here.


3rd Annual Pittsburgh Amyloidosis Research Benefit

Oct 26

3rd Annual Pittsburgh Amyloidosis Research Benefit

October 26, 2018


Coraopolis, PA


The Amyloidosis Foundation is proud to announce the 3nd Annual Pittsburgh Amyloidosis Research Benefit on Friday, October 26, 2018. Our goal is to raise donations for the AF Research Grant Program. Since 2005, the foundation has awarded over $1.7 million to young researchers pursuing a cure for amyloidosis. Courtney Sullivan, daughter of Dr. Darcy Tannehill (amyloidosis patient, Pittsburgh resident and member of the Amyloidosis Foundation Board of Directors) who passed away on April 21, is the Chairwoman for our fundraiser.

The event will be at the Montour Heights Country Club starting at 5:30pm. The evening will include strolling appetizers, gourmet dinner, live music, wine raffle, cash bar and a silent auction. Proceeds from this event will allow us to continue our support for ground-breaking medical research.

Join us on this special night as we raise funds for research in memory of Darcy and celebrate our amyloidosis community! Last year we raised $58,000 and with your help we are confident we can surpass that total this year.

Tickets are $175 and we have tables of eight for $1400, click here to purchase. Event sponsorships are also available, please use this link.


For more information, please contact the Amyloidosis Foundation at 1-877-AMYLOID.

Purchase tickets here