3rd Annual Pittsburgh Amyloidosis Research Benefit

Oct 26

3rd Annual Pittsburgh Amyloidosis Research Benefit

October 26, 2018


Coraopolis, PA


The Amyloidosis Foundation is proud to announce the 3nd Annual Pittsburgh Amyloidosis Research Benefit on Friday, October 26, 2018. Our goal is to raise donations for the AF Research Grant Program. Since 2005, the foundation has awarded over $1.7 million to young researchers pursuing a cure for amyloidosis. Courtney Sullivan, daughter of Dr. Darcy Tannehill (amyloidosis patient, Pittsburgh resident and member of the Amyloidosis Foundation Board of Directors) who passed away on April 21, is the Chairwoman for our fundraiser.

The event will be at the Montour Heights Country Club starting at 5:30pm. The evening will include strolling appetizers, gourmet dinner, live music, wine raffle, cash bar and a silent auction. Proceeds from this event will allow us to continue our support for ground-breaking medical research.

Join us on this special night as we raise funds for research in memory of Darcy and celebrate our amyloidosis community! Last year we raised $58,000 and with your help we are confident we can surpass that total this year.

Tickets are $175 and we have tables of eight for $1400, click here to purchase. Event sponsorships are also available, please use this link.


For more information, please contact the Amyloidosis Foundation at 1-877-AMYLOID.

Purchase tickets here

2018 Hills & Hollers Amyloidosis Fundraisers in Tennessee

Nov 10

2018 Hills & Hollers Amyloidosis Fundraisers in Tennessee

November 10, 2018

Burwood Community Center


Join us on November 10, 2018 for the Hills & Hollers events near Nashville, TN! Present Troubles Racing, Inc., a nonprofit organization focused on raising amyloidosis awareness and supporting patients and families dealing with this disease, host this annual day of fun. The Hills and Hollers Half Marathon and 5K serves as their main fundraiser for the year.

The race begins and ends at the Burwood Community Center in rural Williamson County, TN. The Half Marathon is a looped course that features rolling hills and hollers (some call them hollows) through the communities of Burwood and Boston. The 5K is a mostly flat out and back run, sprint, or walk from the Community Center. The Hills and Hollers also includes the Little Holler Run; a .17 mile (300 Yards) fenced off course for kids 7 and younger.

Runners and thier families can also enjoy our race day silent auction with a variety of options to bid on such as gift cards, homemade baked goods, baskets, crafts, and more. The Hills and Hollers also claims to be the “best fed race in town.” There is no shortage of food and drink awaiting you at the finsh line.

They support the Amyloidosis Foundation and our mission to provide patient support, education, research and awareness.

More details on the event here.

Register here.

Amyloidosis Symposium at Washington University in St. Louis

Nov 17

Amyloidosis Symposium at Washington University in St. Louis

November 17, 2018

8:00am - 3:30pm

St Louis, MO


The Amyloidosis Foundation is proud to be a partner at this event, “Contemporary Diagnosis and New Advances in the Treatment of Amyloidosis” on Saturday, November 17, 2018 at Washington University in St. Louis, MO, chaired by our Board of Director, Daniel Lenihan, MD.  This is a symposium for providers, patients and their families. Continuing Medical Education (CME) credits will be available.

Patients touched by amyloidosis and their families are invited to attend the lunch and afternoon session. The breakout sessions will allow attendees the opportunity to ask questions of various medical providers and network.

Guest faculty includes:

Morie Gertz, MD, Professor of Medicine
Mayo Clinic, Rochester, Minnesota

Jose Nativi Nicolau, MD, Assistant Professor of Medicine
University of Utah, Salt Lake City, Utah

This course is planned and designed inter-professionally by and for physicians and nurses. It is intended for physicians in cardiology, neurology, gastroenterology, oncology, hematology, nephrology, hospitialists, internists, family and general medicine as well as physician assistants, nurse practitioners and nurses.

The intended result of this activity is increased knowledge, competence, performance and skill. At the completion of the activity registrants should be able to:

•State the etiology and epidemiology of both TTR and AL amyloidosis
•Select appropriate diagnostic approach in amyloidosis
•Differentiate AL vs TTR in diagnosis of amyloidosis
•Outline current therapeutic options
•Describe current research developments in AL and TTR

Register here.