Nashville Support Group Meeting

May 05

Nashville Support Group Meeting

May 5, 2018

9am - 12pm

Nashville, TN


This group is for everyone seeking amyloidosis support. We will host our next meeting at the Vanderbilt University Medical Center (East, Room 8380B) in Nashville on Saturday, May 5, 9am – 12pm. Breakfast will be provided.

Alan Stuckey, Certified Nuclear Technician from the University of Tennessee-Knoxville, will be our guest speaker and talk about the protocols for non-invasive imaging of amyloidosis patients at the U of T by using PET/CT and SPECT/CT.

RSVP here. Please contact our support group leader, Charlotte Haffner, if you need additional information:


Golf to Support the Amyloidosis Foundation

May 12

Golf to Support the Amyloidosis Foundation

May 12, 2018


Clarkston, MI


Join us for our annual Amyloidosis Foundation Golf Fundraiser on Saturday, May 12 at The Fountains in Clarkston, MI.

This is a scramble – all skill levels are welcome! Last year we had a wonderful day and look forward to an even bigger success in 2018.

Registration starts at 8am, shotgun start at 9am. Lunch is scheduled for 2pm.

Cost for single is $110, a foursome is $400. We have many opportunities for sponsors and volunteers, please use the links below for more information on how you can support this important fundraiser.

Save the date and register today!


3rd Annual Pittsburgh Amyloidosis Research Benefit

Oct 26

3rd Annual Pittsburgh Amyloidosis Research Benefit

October 26, 2018


Coraopolis, PA


The Amyloidosis Foundation is proud to announce the 3nd Annual Pittsburgh Amyloidosis Research Benefit on Friday, October 26, 2018. Our goal is to raise donations for the AF Research Grant Program. Since 2005, the foundation has awarded over $1.7 million to young researchers pursuing a cure for amyloidosis. Dr. Darcy Tannehill, amyloidosis patient, Pittsburgh resident and member of the Amyloidosis Foundation Board of Directors, is the Chairwoman for our fundraiser.

The event will be at the Montour Heights Country Club starting at 5:30pm. The evening will include strolling appetizers, gourmet dinner, live music, wine raffle, cash bar and a silent auction. Proceeds from this event will allow us to continue our support for ground-breaking medical research.

Join us on this special night as we raise funds for research and celebrate our amyloidosis community! Last year we raised $58,000 and with your help we are confident we can surpass that total this year.

Tickets are $175 and we have tables of eight for $1400, click here to purchase. Event sponsorships are also available, please use this link.


Hotel reservation information

Sheraton Pittsburgh Airport, 1160 Thorn Run Road, Coraopolis, PA  15108

Phone: 412-262-2400 (hotel) or 866-716-8134 (reservations)

The hotel is 5 minutes from the event and there is a complimentary shuttle to the benefit.



For more information, please contact the Amyloidosis Foundation at 1-877-AMYLOID.

Purchase tickets here