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Following is a list of individuals diagnosed with Primary, Secondary or Familial Amyloidosis, or in rare instances, Amyloidosis in other forms. Information here is provided by the patient or by someone who is part of the patient's support network and may not be entirely
accurate. Our understanding of Amyloidosis changes on a daily basis with new research and as we struggle to educate ourselves about this rare and complex disease.
To read any individual's detailed story, click on the names listed below.
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Displaying 1 - 5 of 270 Total Results |
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| Name: |
Hanan |
| Home: |
Texas |
| Amyloidosis Type: |
Primary AL Amyloidosis w/Myeloma |
| Affected Areas: |
Heart |
| Treatment Date: |
02/2005 |
| Primary Treatment Received to Date: |
Oral Chemo, Thalidimide, |
| Create Date: |
6/11/2005 10:16:02 AM |
| Updated: |
6/20/2005 |
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| Name: |
Reem Abdel-Hadi Turujman |
| Home: |
Jerusalem / Israel |
| Treatment Date: |
two years |
| Primary Treatment Received to Date: |
Oral Chemo, |
| Create Date: |
1/4/2004 11:46:30 AM |
| Updated: |
1/24/2004 |
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| Name: |
Susan Abson |
| Home: |
Solihull, West Midlands, UK |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Hospital: |
Royal Free Hospital, London England |
| Treatment Date: |
10/1999 |
| Primary Treatment Received to Date: |
Intravenous chemotherapy |
| Updated: |
11/15/2001 |
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| Name: |
William G. Alexander |
| Home: |
Potomac, MD, USA |
| Amyloidosis Type: |
Primary AL Amyloidosis |
| Affected Areas: |
Heart |
| Hospital: |
Georgetown University Medical Center |
| Treatment Date: |
12/2001 |
| Primary Treatment Received to Date: |
oral low dose melphalan, Enbrel in final weeks |
| Updated: |
3/28/2002 |
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| Name: |
William Alkire |
| Home: |
Pismo Beach, CA USA |
| Amyloidosis Type: |
Localized |
| Hospital: |
Univ. of California, San Francisco |
| Treatment Date: |
1993 |
| Primary Treatment Received to Date: |
Six surgeries |
| Create Date: |
9/27/2004 8:56:46 PM |
| Updated: |
10/18/2004 |
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Multiple myeloma is considered similar to amyloidosis by some experts. For histories presented with multiple myeloma experiences, click here.
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